tag:blogger.com,1999:blog-6959743956771743818.post4048898482089371806..comments2011-04-02T04:00:45.614-04:00Comments on Pressure Support: Just a bunch of Homebodies.Erichttp://www.blogger.com/profile/06006668752522832661noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6959743956771743818.post-18574686217713478912009-11-05T14:21:03.743-05:002009-11-05T14:21:03.743-05:00I'm so glad you found our blog! Your Liam is ...I'm so glad you found our blog! Your Liam is adorable! I can empathize with your frustration at the hospital. When Mikan had to return to the PICU we ended up staying much longer because his doctors wouldn't send him home without home care established since his needs were so high. Unfortunately, a bad experience with home care in the first place was what sent us to back to the hospital. <br />He was in the NICU 151 days, then home for 2 weeks, then back in the PICU 35 days.<br /><br />You're right, ours is an uncommon road, but I've been shocked to find out how many others have similar stories too. They just crawl out of the woodwork when you have an experience like this. <br /><br />Mikan finally got off his ventilator when he was 15 months old (he's 20 months now). He still has a trach and g-tube. It's a long road, but, as you know, you learn to adapt and just love your kid. I'll be praying for Liam and his continual progress.<br /><br />JennaJohn and Jenna Gensichttps://www.blogger.com/profile/15404726548055060185noreply@blogger.com